Sophie shared her personal story of change and resilience in preparation for their upcoming assessment.

Sophie Roberts class of 2022, engaged the audience immediately as she began speaking openly about her life after being diagnosed with Ehlers-Danlos Syndrome. The questions asked by students were thoughtful and respectful, as she told of her experiences, particularly about the diagnosis leading to other medical conditions and ongoing challenges. The news came as a major change in her life and affected many areas at once: her health, daily routines, independence, and future. We were able to see that change is rarely a single event, but something that creates a ripple effect across many areas of a person’s life.

Sophie also spoke of what has helped her to stay resilient. She highlighted the importance of having supportive people around her, advocating for herself within the healthcare system, and maintaining a positive mindset - even when things felt overwhelming. The class was especially interested to hear about her recent trips to Germany, where she underwent experimental surgery that has led to positive outcomes.

For Level 2 Health students, hearing a firsthand account like this is invaluable. It moves the subject matter from a textbook to a persons’ reality. Her perseverance and positivity while seeking opportunities, even when the journey is long and difficult, made a strong impression, on them. One described her as ‘a powerful role model’ who showed what it means to keep going despite ongoing challenges. 

OHS Leader of Learning for Health & Physical Education, Ms Eastwood, thanked Sophie for sharing her journey so openly. Her visit not only supported students in preparing for their assessment but has also encouraged them to think more deeply about how people manage change in real life. 

"We look forward to following your journey, Sophie. You are a living example of the "ripple effect" that health challenges can have on a person's entirety. Our students will carry your message of resilience forward into their own learning."

Note: Ehlers-Danlos syndrome (EDS) is a group of 13+ inherited, genetic connective tissue disorders that cause systemic, lifelong symptoms, including joint looseness, stretched skin, and tissue fragility. There is no cure, so management focuses on supporting joints and reducing pain.